tag:blogger.com,1999:blog-2406669952841224025.post2947820839168047018..comments2023-11-05T01:40:19.220-08:00Comments on Connor's Song: Grow Little Grow Worm, Grow!*Jesshttp://www.blogger.com/profile/06306757421878995110noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-2406669952841224025.post-32274264615263482952009-06-20T11:09:03.057-07:002009-06-20T11:09:03.057-07:00Aren't g-tubes fabulous that way? My littlest...Aren't g-tubes fabulous that way? My littlest guy has one and it's been a lifesaver (for him) and a sanity-saver (for me) BIG time. We've resigned ourselves over here to maybe never tasting the glory of greater-than-3rd-percentile-height but height-to-weight we are quite robust, thank-you-very-much. At nearly four my guy still has his baby creases (um yeah..."syndrome-y," as our geneticist puts it) and lucious chubby cheeks, and this is a kid who took until he was six months old to hit nine pounds in weight (full-term and seven pounds at birth, mind you). Before we figured out that he needs an elemental diet he was literally starving on an OBSCENE number of calories, and is still on many more than the average kid his size needs, but not having to fight with him over oral intake is priceless (he will take in perhaps a tablespoon of liquid and three bites of food per day by mouth left to his own devices and the tube lets that be a FUN thing rather than a battle). It's also pretty awesome when he needs something like liquid Zantac or cough syrup that is BEYOND nasty, and he had the rotovirus that put his older brother in the hospital but thanks to a steady flow of Pedialyte from his pump weathered it nicely at home. We heart g-tubes here!MFA Mamahttps://www.blogger.com/profile/11052734298141262385noreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-70117539402668611382009-06-19T09:12:11.131-07:002009-06-19T09:12:11.131-07:00Hey! Guess I'm not the only fan of Big Band m...Hey! Guess I'm not the only fan of Big Band music out there!Jesshttps://www.blogger.com/profile/06306757421878995110noreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-53492879456750266532009-06-17T20:26:48.092-07:002009-06-17T20:26:48.092-07:00I know that the G-tube decision is a difficult one...I know that the G-tube decision is a difficult one...not one I've had to consider. Certainly, it sounds like you guys made the right one. <br /><br />Love your descriptions!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-63879514801209116912009-06-17T09:48:01.166-07:002009-06-17T09:48:01.166-07:00Lurker here, so I make four. Glad Connor is growi...Lurker here, so I make four. Glad Connor is growing! I have a granddaughter with Prader-Willi, who is on growth hormones and has a myriad of physical problems, so I can emphasize somewhat with your situation.Renatenoreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-44934601031876365102009-06-17T09:11:22.721-07:002009-06-17T09:11:22.721-07:00well I make 3 and then there are the lurkers... g...well I make 3 and then there are the lurkers... grow on Mr. C.J.https://www.blogger.com/profile/06561280926172635650noreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-66153592905060113212009-06-17T03:41:11.781-07:002009-06-17T03:41:11.781-07:00I *thought* he looked like he'd grown!! What g...I *thought* he looked like he'd grown!! What great news. Keep it up, Connor!Julia O'Chttps://www.blogger.com/profile/16330856629856439993noreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-50206991520718865832009-06-16T23:30:59.802-07:002009-06-16T23:30:59.802-07:00[raises hand] I'm one of the two, obviously. A...[raises hand] I'm one of the two, obviously. All is forgiven. I echo your desires for Connor to grow, little grow-worm, in a similarly corny fashion.Mary Cyrushttps://www.blogger.com/profile/14024629745837124042noreply@blogger.com