tag:blogger.com,1999:blog-2406669952841224025.post5277288672142074276..comments2023-11-05T01:40:19.220-08:00Comments on Connor's Song: In Which Connor And I Make A Mess of ThingsJesshttp://www.blogger.com/profile/06306757421878995110noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-2406669952841224025.post-69539933540121276032009-07-15T13:01:45.384-07:002009-07-15T13:01:45.384-07:00Yes, I agree that all of the parents and children ...Yes, I agree that all of the parents and children are watching you with admiration and awe! I am Xander's interpreter at his music class and library story time, and I know very well the uncomfortable feeling of having all eyes on me. The awkwardness fades a little every time because so many parents approach me after the sessions to ask me questions and advice. . . and I'm no expert either!Michellehttps://www.blogger.com/profile/00750685773270490935noreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-65626123130989787102009-07-10T16:46:06.759-07:002009-07-10T16:46:06.759-07:00I'll have to look up the pyloroplasty... or ma...I'll have to look up the pyloroplasty... or maybe not. I really need to step back from the google (gastroparesis and hearing loss can happen in mitochondrial disorders, which is rather disheartening material to read). I'm hoping they'll start with some sort of diet modification, but since he's been FTT for 10 months, I'm not sure what the GI will do/think. He actually ate 2 slices of bread today (believe me, that's HUGE)! Now let's hope he doesn't puke it up.leahhttps://www.blogger.com/profile/05004783118268323560noreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-86500680060358466932009-07-10T12:47:55.093-07:002009-07-10T12:47:55.093-07:00My daughter uses a feeding pump at night and I am ...My daughter uses a feeding pump at night and I am always afraid she is going to break apart the connection and this very thing will happen. UGH!<br /><br />As for the signing at the library - I think it is wonderful. The fact that you can learn and remember new signs that quickly is pretty amazing!Wherever HE Leads We'll Gohttps://www.blogger.com/profile/15042627234253638468noreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-85310234357343008732009-07-10T11:13:18.726-07:002009-07-10T11:13:18.726-07:00Hm. If anyone makes a not-so-nice comment about yo...Hm. If anyone makes a not-so-nice comment about your signing, I know a sign you could give them! You might get kicked out of the library, though.<br /><br />All kidding aside, I can't imagine that any of the parents are looking at you with anything other than admiration.Julia O'Chttps://www.blogger.com/profile/16330856629856439993noreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-3970500896340636452009-07-10T06:21:13.448-07:002009-07-10T06:21:13.448-07:00This comment has been removed by the author.Julia O'Chttps://www.blogger.com/profile/16330856629856439993noreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-49724350722916009172009-07-10T04:52:57.332-07:002009-07-10T04:52:57.332-07:00We have the same situation at our library- if ther...We have the same situation at our library- if there is any interpreting going on, I'm the one doing it (I don't interpret everything because I'm REALLY not that good)! The good news is that the peanut gallery doesn't have a clue about sign language, so it doesn't matter if you mess up. <br /><br />Thanks for your kind words- we certainly hope the upper GI comes back clean, too. Though we know he has gastroparesis, and a structural problem would be easier to correct than dealing with the gastroparesis (from what I've read, there isn't a lot they can do for that). I never knew that getting my kid to eat would be such a big deal!leahhttps://www.blogger.com/profile/05004783118268323560noreply@blogger.com