tag:blogger.com,1999:blog-2406669952841224025.post6886493660341047011..comments2023-11-05T01:40:19.220-08:00Comments on Connor's Song: In Which Connor Has Another SeizureJesshttp://www.blogger.com/profile/06306757421878995110noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-2406669952841224025.post-43400214461506844272009-11-23T13:09:16.032-08:002009-11-23T13:09:16.032-08:00Oh Jess, what a troubling experience. I'm thi...Oh Jess, what a troubling experience. I'm thinking of you guys and sending lots of love.xraevisionhttps://www.blogger.com/profile/08379269876085160558noreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-12630870561144467902009-11-23T13:05:12.702-08:002009-11-23T13:05:12.702-08:00That is disturbing.
We're switching over to K...That is disturbing.<br /><br />We're switching over to Keppra and our doc says that there's a lot of wiggle room in dosing--maybe Connor just needs a little more?Katyhttps://www.blogger.com/profile/02189007616883663434noreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-58842668673177271312009-11-23T12:04:58.982-08:002009-11-23T12:04:58.982-08:00I cannot stand seizures, they are just horrible.I cannot stand seizures, they are just horrible.Jennifer Ortizhttps://www.blogger.com/profile/14350225247489608653noreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-45196672419055168842009-11-23T08:33:19.482-08:002009-11-23T08:33:19.482-08:00oh my, glad to hear he is alright, i hope the neur...oh my, glad to hear he is alright, i hope the neuro can find something that works without to much struggle.stellarparenting.comhttps://www.blogger.com/profile/04975942737904876508noreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-51999440064941929332009-11-23T06:04:43.765-08:002009-11-23T06:04:43.765-08:00I'm so sorry. So frightening and stressful. ...I'm so sorry. So frightening and stressful. I hope you get effective treatment for it soon. We have a black and white video monitor that is great -- although very sensitive to interference, and sometimes no matter where we put the receiver we can't get a clear signal. Fortunately, the video is usually clear enough, even if we have to have the sound turned down because of static. My advice would be to go up-market on the monitor, and read customer reviews.Juliahttps://www.blogger.com/profile/12065377267682881396noreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-88221919684505137832009-11-23T05:42:44.708-08:002009-11-23T05:42:44.708-08:00How completely terrifying. Thank God the Mommy Mon...How completely terrifying. Thank God the Mommy Monitor was working and you decided to check on him.<br /><br />I'll get the prayer line going. I wish I could do something other than pray and tell you that I'm thinking about you guys. I hope you hear back from the neurologist soon and that he/she has answers for you.Julia O'Chttps://www.blogger.com/profile/16330856629856439993noreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-22148931583699164982009-11-23T05:22:13.610-08:002009-11-23T05:22:13.610-08:00The change in seizure type is stressful, especiall...The change in seizure type is stressful, especially if his monitor can't pick up the new type. I hope Connor's neurologist can get back to you very quickly. They really need to come up with better pulse-oximeter monitors- ones that don't go off because they slipped out of place, etc. <br /><br />Hopefully this is just a bump in the road and things will settle down very soon.leahhttps://www.blogger.com/profile/05004783118268323560noreply@blogger.comtag:blogger.com,1999:blog-2406669952841224025.post-91178052080989450282009-11-23T03:33:29.983-08:002009-11-23T03:33:29.983-08:00Oh, Jess, I am so sorry that Connor's seizures...Oh, Jess, I am so sorry that Connor's seizures are changing and not as well controlled right now. It's stressful as it is when your child has multiple medical issues (ours have been different but we've been there), but the changes on top of everything? Ouch. Sending prayers that there is a simple explanation and even simpler treatment/fix.Niksmomhttps://www.blogger.com/profile/14715465327343655483noreply@blogger.com