Highs and Lows

Today started off relatively well, if way, way too early. Since we only have one car, if I need it during the day I have to take Jeremy to work. Taking him to work this morning meant getting up at 5:20. Connor was not thrilled-- no one asked him if he needed the car today, and I'm pretty sure he'd rather have slept in.

I had approximately 8,000 things to do today, and the day started off pretty well on track. I picked up some paperwork for the school from the doctors' office, called and made two appointments and left Connor's doc a note with four or five more things I need from him, left a message with the nurse down in the GI clinic about Connor's g-tube, which has begun splitting at the end, stopped in at the housing office and gave our thirty days notice, and called back a couple of people who are interested in becoming Connor's respite care worker. (Katy can't do it any more, which is very, very sad. We miss you, Katy!) Connor and I did some therapy and sorted through more of his clothes. The box I was sorting into just happened to be the perfect height for him to stand against, and he did a great job! I had to take a picture, which proved to be difficult. That's my foot I'm using to steady him in the pic. I'm nothing if not a multitasker. I was pretty proud of myself for being so productive, and we stopped around 11:30 for a leisurely lunch break and what I thought would be a short nap.

In the afternoon we were supposed to take a load to the new apartment, do our inventory and walkthrough, drop some paperwork off for the Puyallup school district, and hit the grocery store. None of that happened, though, because just after lunch Connor had another seizure.

This one lasted for about a minute-- long enough for me to start freaking out and thinking about where the diaper bag with the Diastat in it was. I lay him down on the floor, did rescue breathing until he started breathing again on his own and then hooked him up to his oxygen for a little while until his color returned. He hasn't had any seizures since November, and then all of the sudden he's had two in a week and a half. I really, really don't like that he's had two so close to one another. I called the neurologist, but he didn't get back to me today. If we don't hear from him by tomorrow afternoon I'll call down to Children's in Seattle and see what they have to say. In the meantime, I'm back to that stage where I want him stuck to my hip, and every time he sets his apnea alarm off in his crib (he's figured out how to set it off to get my attention) I'm sprinting in there instead of sauntering like I have been doing for the last couple of months. I'm paranoid about him having a seizure and me being in the shower or the bathroom and not being there to get him breathing again until it's too late.

Needless to say, we did nothing the rest of the afternoon. Connor took a four hour nap-- his seizures make him really, really sleepy after he has one-- and then we just hung out for the rest of the day. Jer got home about 9:30, and as soon as I post this we're off to bed.

It was a crazy, crazy day.

~Jess