Last night Connor woke up at 11:00pm and stayed up until 5:30 in the morning, so I wasn't exactly coherent most of the day. I did get a bit of sleep as he didn't wake up again until 9:00am, but I was still pretty spacey. I took the kids over to my parents' house in the afternoon and took a long nap, which turned out to be a pretty good idea.
It's currently past 1:00am and the little guy shows no signs of sleeping any time soon, so we may be pulling another all nighter. I suspect he may be cutting a couple of molars, and that may be the problem-- he's been stuffing a lot of things in his mouth lately, which is unusual for him.
So needless to say we didn't do much this morning, but after my nap this afternoon the kids and I headed over to the Santa parade downtown. It took us quite a while to find handicapped parking, but we finally found a spot and walked over to the very start of the parade, where we found a good spot on a corner. Both the kids were fascinated by all the floats lit up with Christmas lights, and Eden couldn't believe that everyone was passing out candy. "It's like Halloween!" she said in delight.
We also saw a couple of kids in wheelchairs playing in the high school bands. When Eden first came, we told her that if she wanted to learn an instrument and play in the marching band she could, but she didn't believe that people with disabilities would be allowed to play in public with everyone else. So she was really, really excited to find out that we were telling her the truth. I was very glad she got the chance to see them and confirm once again that there are opportunities out there for people with disabilities, but it made me a little sad too to see just how surprised she was about it.
So overall the parade was a success, but we had to leave early because it was so darn cold outside; it was in the teens and still dropping when we got back to the van, and even with a bajillion blankets, hats, scarves and gloves they both were getting way too cold. So we headed back early, ordered some pizza and got ready for bed in the (as it turns out overly optimistic) hope that Connor would sleep.
Oh well.
~Jess
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4 years ago
2 comments:
I'm happy she was able to see diversity in the parade's marching band. That sounds like it was worth the cold for the outing.
Courtesy of www.bringingthesunshine.com's linky roundup, this article is about an Alabama pediatric resident on his way to practicing medicine. His CP limits his ability to walk long distances.
http://www.al.com/living/index.ssf/2013/12/despite_set_backs_dr_tyler_sex.html
oh, Jess, I am soooo happy you're back and just delighted to hear about Connor and Eden's seasonal joy and new experiences! Thank you for sharing...any stocking making going on this year?
Fondly,
Traci
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