Connor only had three seizures today, so we're moving in the right direction. Hopefully as we continue to titrate up towards his full therapeutic dose we'll see his seizures start to taper off. So far we haven't seen a lot of side effects as far as his new med goes, though he did throw up quite a bit today.
Ellen had her first swim meet here, and she did very well! At first she didn't want to go, but as I dragged her to it anyway and as I expected once she got there she threw herself into it. I'm starting to know her moods and figure out a little bit about what makes her tick, and I've noticed that she's not a huge fan of new situations (though she almost always ends up having a blast once she gives them a go). I think this was her first time racing with typical kids, and she was pretty nervous about it. Everybody cheered for her and she beat her best times in all of her races, so by the end of the night she was really enjoying herself.
It was neat to hear the other kids cheering for Ellen and wishing her good luck; as her English has been improving and her obviously outgoing character has started shining through I've started noticing that more and more kids are saying hello to her at swimming and school. She's started mentioning friends in her classes, and it's really nice to see that kids are being helpful and welcoming. I've been pretty worried about her, since in my opinion middle school kids sometimes can be the Meanest People On The Planet due to their hormones grabbing the reins and taking over from common sense, but so far so good!
~Jess
5 years ago
2 comments:
Her progress and the kindness of the kids delights me! <3 You have a wonderful daughter. I am glad to hear the meds seem to be working. You all have incredible strength and beauty. :)
Thats great everyone is being so nice to Ellen. Kids can be so cruel at the middle school age especially about disablities. Belive I was there and not too long ago.
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