That was a beautiful post, as always. I think that a really healthy dose of denial has been a big part of your success with Connor. Maybe another way to say it is that you've surrendered control (for that over which you have no control anyway) -- it's not your job to write the end of this story, that's Somebody Else's Problem. Each page has so much written on it, and so much joy, that focusing on each page in turn is a much better use of your energy.
I continually admire your attitude. I guess I wouldn't call it denial, but a joyful living-in-the-moment. You accept the reality of Connor's situation, but don't dwell on the sad parts.
You have a beautiful life. Connor couldn't have better parents.
I'm Connor's Mom. That pretty much explains everything. I mean, raising the epicenter of cuteness in the universe is tough, but it has its moments, all right.
I should probably mention that Connor has a submicroscopic, subtelomeric unbalanced translocation 46xy der t(1)(1;15)(q42;q26.2)-- an extremely rare chromosomal disorder. He keeps me on my toes!
7 comments:
I very much enjoyed your post at Hopeful Parents.
My friend, Joy, has stood where you have and is now on the other side.
her blog is www.joyinthejourney.com
Her daughter was so special to us and I miss her very much.
I love your posts.
Hi Kristin,
Thanks so much!
I'd love to read Joy's website, but www.joyinthejourney.com takes me to Life Coach Dani Palacio's website. Is that where you meant to link to?
Thank you for phrasing that better than I could.
This is what happens when I multi task!
www.joyinthisjourney.com
It's this not the!
My son was trying to help. He 7 months old!
This is what happens when I multi task!
www.joyinthisjourney.com
It's this not the!
My son was trying to help. He 7 months old!
That was a beautiful post, as always. I think that a really healthy dose of denial has been a big part of your success with Connor. Maybe another way to say it is that you've surrendered control (for that over which you have no control anyway) -- it's not your job to write the end of this story, that's Somebody Else's Problem. Each page has so much written on it, and so much joy, that focusing on each page in turn is a much better use of your energy.
Jess,
I continually admire your attitude. I guess I wouldn't call it denial, but a joyful living-in-the-moment. You accept the reality of Connor's situation, but don't dwell on the sad parts.
You have a beautiful life. Connor couldn't have better parents.
Julie
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