Thursday, May 13, 2010

In Which Connor Sleeps In

Connor didn't go to school today. 

He wasn't sick, and he didn't have a seizure or anything like that.  The kid just didn't want to wake up.

The past four nights or so the little guy has not been sleeping well; his reflux has been acting up, and I suspect that it's the medication change that's caused the trouble.  I think it's making him a little bit, um, stopped up, if you know what I mean.  This is the only side effect from the medication change we've seen, and it's certainly not a horrible one as far as side effects from seizure medications go, but it's basically making his whole system back up and as a result he's not sleeping well.  He's been averaging about six hours of uninterrupted sleep a night, and the kid is used to getting between ten and twelve.  And of course, he refusing to nap.  Glorious.

As a result he's gotten progressively crabbier in the mornings, and because he was up five or six times last night I was relatively sure he'd be getting nothing out of being at school today.  So I let him sleep, and he snoozed until ten in the morning; an unheard of hour for him.  Usually the kid is up by a quarter to seven at the latest. 

We started on a Miralax regime today, and hopefully by the time the weekend is over he'll be back to sleeping through the night.  I'll certainly be glad of it, because it's physically impossible for me to sleep when the little guy is awake.  Don't ask me why; I certainly would like to be able to; especially if Jer's taken care of whatever Connor needs, and all he's doing is laying in there singing to himself.  But I just can't do it. 

Anybody else have this problem, or is it just me?



Kristin said...


My oldest has Autism. She also has severe ADHD and is very sensitive to stimulant medication in regards to sleep.

We made one itty bitty change, moving her 5 mg afternoon med to 10 mg. Itty bitty change in my mind.

She went from sleep 6 hours a night (which was normal for her) to sleeping 1 hour in a 24 hour period. Therefore, I was able to sleep 1 hour in a 24 hour period.

This went on for 5 days. The bad thing was even when we took her back to 5. She still wouldn't sleep. then, we took her off the afternoon dose altogther. Then, she (and I) slept 3 hours in a 24 hour period. Then, I called her neuro and said "Somebody needs drugs to help them sleep. I don't care if it's her or me. But I'm not leaving her without drugs".

I left with Trazadone for her.

She now sleeps 10 hours a night.

It was one of the most miserable points of my life.

Did I mention I was 3 months pg at that point? And I had 2 very typical, very active other kids at the time.

it was one of the most miserable points of my life.

I hope sleep is on the horizon for you.

Christy said...

Big hugs and hoping you sleep soon! I can't sleep when my kids are awake either - even if Brian is taking care of them, I'm up until everyone is back to sleep. Thinking of you!

leah said...

Oh, I hope you can get some sleep soon!

I'm pretty sure there is a "mom gene" on the X chromosome that prevents sleep when there are children awake in the house. I once had my mother-in-law take care of Nolan, and I couldn't sleep a wink. I can only sleep when they're sleeping, safe in their beds.

We have real problems with Nolan sleeping- I'm not sure if it is the central apnea or if it is the severe reflux... I suppose it doesn't really matter what the cause is, but it would be nice to get him sleeping through the night on a regular basis!

I hope Connor starts sleeping soon!

Elizabeth said...

I totally have this problem and always have (my daughter with special needs is now 15!). She has terrible seizures as well, so my husband (God bless the saint that he is) sleeps with her most nights. He is somehow able to wake up when she has a seizure, comfort her and then sleep himself whether she does or not. I, on the other hand, act quite nutso in the night --

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