Wednesday, March 18, 2009

In Which I Worry Over Nothing And We Torture Our Son With Horrible Things

So we had that school meeting this morning, and they immediately changed Connor's IEP date to next Thursday. No fuss about it at all. That makes me very happy-- guess I got all worked up about it for nothing.

I still have some concerns about what will be offered at the IEP meeting, but I don't want to jump to any conclusions as it hasn't happened yet. I'm hoping I'm just being paranoid; with any luck we'll have a fantastic IEP meeting and Connor will get everything out of it that he needs without any fuss. I guess I subscribe to the "prepare for the worst and hope for the best" philosophy. I'll keep you all posted.

After our school meeting, we met with Connor's Special Education teacher for some sensory play. I thought that the sensory box was filled with Easter grass, but apparently in Connor vision it was filled with huge, venomous snakes. Also possibly broken glass. He reacted as if we were killing him when we made him put his feet in it. Then we made him touch all sorts of things-- things with bumpy parts and squishy parts and, God forbid, sticky parts. Horrors.

We're so mean.

After we were done torturing our son, we drove up to Seattle Children's for his anesthesiology appointment. This went about as it usually does-- they ask us a billion questions related to Connor's heart condition and then have us sign some paperwork. Sounds like we're all set up for Monday's surgery, provided Connor doesn't get sick or something before then. This week is really flying by-- I can't believe Connor's having surgery in five days! It doesn't seem possible.

Tomorrow we're getting up super bright and early to take Jer to work, and then Connor's respite care worker is picking him up and I'm visiting the schools. Then I'm picking up Connor and making preparations for that reception we're throwing tomorrow. Another crazy day in the making!
~Jess


4 comments:

Ellen Seidman said...

You sure know how to show Connor a good time! :) Don't sweat the IEP (I know, easy for worrywart me to say). In my experience, they almost always go better than expected.

Kara said...

Yikes...brightly colored Easter grass between the toes could send anyone around the bend!!

Julia O'C said...

Connor's little face in that picture is heartbreaking, but even worse is the expression on his dad's face! It looks like he's having a rougher time than Connor.

Lin said...

Oh, look at his little grumpy face! Poor guy! You've got a LOT going on--good luck to you!

 
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