Monday, May 23, 2011

In Which Connor Has A Whole Bunch Of Seizures And We Have A New Gameplan

Connor didn't have such a hot day today.

He had six seizures, which was a trend rather in the wrong direction from the way we want to see him going.  He had his first seizure just after seven in the morning, so I called the neurology department and they got back to us very quickly.  They called our local hospital to get the medication levels that were drawn for Connor at the tail end of April and then gave us a ring back.

Turns out that Connor's body is metabolizing his Lamictal way too quickly-- his blood levels are less than half of what they should be and he's already on a pretty good dose.  So the neurologist is adding a drug called Depakote to Connor's regime.  This will have a double effect-- it will increase the efficiency of the Lamictal he's already taking, and it will act on its own as an anti-epileptic drug.  We're keeping his Keppra and Lamictal doses the same for now, and seeing how he adjusts to the new meds.

I have no idea where Connor got his crazy metabolism-- he sure as heck didn't inherit it from me.  I kind of wish I had it, though, because if I did I bet I could eat way more chocolate than I already do now. 

So that's the plan.  We'll be watching Connor closely over the next couple of days to make sure he won't have any adverse effects from the medication change; we're planning on keeping him home from school tomorrow just to make sure he's doing okay.  Hopefully he'll be able to go back on Thursday.  In the meantime, keep your fingers crossed for us that this medication will do the trick!

~Jess

2 comments:

Tired Mom said...

My prayers and thoughts are with you and Connor!!! Good luck!!!

leah said...

I am hoping and praying the depakote works to control his seizures!

 
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