Connor had a good day today-- other than being a little more tired than usual we didn't see any ill effects from yesterday's seizure. I'd put his seizure medication into his g-tube pump yesterday morning rather than his g-tube directly, and the speculation was that perhaps the longer period of time it took to get the medication in triggered the seizure. We actually set an alarm and he gets his meds at the same time each morning and evening; even an hour difference can trigger a seizure. So from now on we'll put his meds directly into the g-tube rather than into the pump, and with any luck that will stave off any future seizures, as his medicine dosage for his weight is pretty good.
The little guy had physical therapy today, which he pouted his way through a good portion of as he didn't really feel like working, but otherwise we took it easy. He's on Spring Break, so he's not attending school right now (not that he ever does on Wednesdays) and we mostly hung around the house with him. We won't be having a party for him tomorrow; we figured we'd wait until school started up again and he's back in his routine before we shake things up by having his classmates over. He was extremely confused when his teacher and aide visited, so we don't want to compound the issue right now. Also the kiddo is not a fan of loud noises, people in his personal space, or doing much of anything party related-- such as eating cake or touching his new presents-- so any party we throw will probably be more for Jeremy and me than for him, which isn't really fair.
So instead, tomorrow we're going to have a special Connor day. We'll give him a choice between a number of fun activities depending on the weather, such as the park, the zoo, the aquarium, the hot shop at the Glass Museum, or a play day at home. I'll make him some chocolate pudding and he can open all of his presents and only touch them if he wants to. And we'll take some extra time for snuggles and reading and listening to music and petting the cats and all of the activities he really enjoys doing. Hopefully it'll be a pretty good birthday for him, and we'll skip doing the things he doesn't care for, such as socializing. Also hopefully we'll skip having more seizures. Because as much as we enjoy meeting our local emergency personnel, that would not improve the birthday festivities. I don't think I'd have enough chocolate pudding to go around.
I can't believe he'll be four!
4 weeks ago