Saturday, August 13, 2011

In Which Connor Does A 180

Well today was about eighty gajabillion times better.

Not only did Connor have absolutely zero seizures today, but he was in a better mood than I've seen the kid in weeks.  We're talking a super-happy, giggly, shrieking-loud-enough-to-shatter-glass sort of mood.  Apparently he was feeling just a tad bit better.

His muscle tone was still totally shot-- carrying him felt a little like hauling around a bag of wet cement today-- but I'm not really surprised by that given the medication changes, the events of the past two days and also the fact that he stayed up until four in the morning last night.  Still, today was such a vast and dramatic improvement over the past week that it reminds me pretty sharply of what happened when we took Connor off the tegretol last year-- except for the part where I was completely freaking out about Connor having three seizures in a day.  Now I don't really start freaking out until he has six or seven seizures in a day. 

That's kind of a depressing trend. 

Anyway, so while nothing is confirmed yet I highly suspect that it was the lamictal that was causing Connor to have his latest major run of seizures.  The lamictal becomes much more potent in a rather unpredictable way when combined with valproic acid, and it may be that it was actually causing him to have more seizures rather than suppressing them.  That's the trouble you can get into when you start messing around with brain chemistry; there's a pretty small sweet spot. 

We'll be keeping him on the ativan for the next few days just to make sure that he transitions well, but I'm hopeful as always that this time the medication change will give him a little bit of peace and a much-needed rest.  We've had more than enough excitement around here to last us a long while.

Bring on the boring!

~Jess

6 comments:

Mary said...

That's the kind of 180 I like to hear about. Hugs to the little guy and to you as well.

leah said...

I hope you guys have a COMPLETELY boring weekend. Here's to getting the medication adjusted to the sweet spot - and lots of hugs to Connor!

Julia O'C said...

Yay! This kind of boring is very exciting!!!

lisa said...

Hip hip hurray!
Lisa

Julia said...

So glad and relieved to hear it. Post titles that have the word "hospital" in them are never good news, and I'd just as soon not see any of those for a very long time. Enjoy some much-needed boring, punctuated by gleeful screams.

Wherever HE Leads We'll Go said...

That is wonderful news! So glad to hear that Connor had a great day. Here's hoping this med change results in many more happy days ahead!

 
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