Wednesday, November 30, 2011

In Which More Seizures Happen

Another day of seizures-- Connor had three today.  He slept in this morning, woke up briefly, had a seizure and then went right back to sleep.  That set the pattern for the day; he dozed on and off throughout the afternoon, and finally perked up later in the evening. 

He spent part of that time with his respite care worker while I drove up to Seattle and ran errands I needed to get done.  I feel guilty about leaving the house knowing that he will probably have more seizures while I'm away, but I know she can handle them just as competently as I can.  Unfortunately it's gotten to the point that if I canceled respite care every time he was having seizures, I would never go anywhere. 

Not that I really want to go anywhere right now; it's just below thirty degrees outside at the moment, though it should heat up into the forties tomorrow.  I'm planning on spending a lot of time sitting next to the fire sipping a cup of hot tea and sewing-- it feels like it's going to be one of those days.  Especially since the little guy slept all day today, and has now decided as a result to be up all night.

Oh well.


1 comment:

Bea said...

You are an amazing mother! I don't know how you do it!

My son had a stroke on day 1, which resulted in seizures. He no longer has seizures at month 8 and I'm so grateful!

Sometimes my heart breaks when I read your posts. I keep coming back hoping that he has a "no seizure" day.

I send you warm thoughts and beautiful feelings...for your whole family!

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