Well today went a heck of a lot better than yesterday.
For starters Connor didn't have a single seizure today, which was great! As weird as it sounds, though, this isn't really indicative of how well this new medication will work for him. Connor almost always has a couple of great days after we change up his medication, which is apparently pretty common. Then once his body has a chance to adjust to the new meds he starts having seizures again. I think there's even a name for the phenomenon, though I don't know what it is off the top of my head.
But we're hoping he gets some good time to recover out of this round of seizure medication, and he'll be ready to go for school, which starts up in just a couple of weeks! And if this medication does end up not working out for us we'll keep looking for our magic bullet-- there are a whole lot of seizure meds out there we haven't tried yet.
So another great thing that happened is that we had some close family friends arrive in town today! Tonight they came to my roller derby bout, which was a whole lot of fun. I felt like I played pretty well, and my team won! Also I wore hot pants with an octopus attacking a submarine on them. I'm pretty sure you can't have a bad day when you get to wear underwear as outerwear. Especially if it's underwear as awesome as that is.
And finally, our CSA really pulled out all the stops with the fruit production this week. The farm we have a share in specializes in berries, and after a late start the fruit is really coming in! I bought extra (CSA share holders get a discount!) and so now I have apricots and cherries and blueberries and plums and champagne grapes (only the tastiest type of grape in the known universe) in the house. And I am eating them all this minute because they are awesome. And to make things even better, we received our first pint of ripe cherry tomatoes. Fresh, local tomatoes that are available a good portion of the year are one thing I really miss about living in Texas, and I so I go a little crazy for the two short months we have them here. Next week I'll probably make an effort to put them in pasta and salads or cook with them or something, but this week I'm planning on eating them all straight out of the carton. Yum!
So in conclusion, it was a no seizure, old friend greeting, undies as outies, rear kicking, ripe tomato kind of day. Sounds pretty great to me!
~Jess
5 years ago
3 comments:
Sounds great to me, too!!! :)
Oooooh, great news, huge relief! Well, a relief for now -- hopefully this is a sign of things to come, rather than just a temporary deal. We've had freaky weather here this summer (way too much rain in the spring, and an extended heat wave in July), so all the plantlife is stressed and suffering -- we've gotten almost no tomatoes out of our CSA. Plenty of great beets, but they're starting to wear thin. (Wish I were.)
So do we get a photo of the hotpants? And I'm still waiting for the tweed hat.
Glad to hear things are getting better. I was holding my breath for you guys.
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