Connor had twenty-one seizures today, which was not at all the kind of day I'd hoped we be having. He didn't stop breathing, but we had to use oxygen on pretty much all of them, and some of them lasted a pretty long time-- the longest was just under five minutes. Though I haven't checked my records to be sure, I think this might be the most major seizures he's ever had in one day. Woo hoo.
Despite being stripped down to a diaper, having a couple of sponge baths and alternating Tylenol and Ibuprofen, the little guy still had a low-grade fever all day, which is why the seizures just kept coming. We talked to his doctor, and if Connor continues to have seizures and a fever by tomorrow night we'll be heading in to the emergency room for the first time since December.
Connor and I spent most of the day on the couch; where he huddled in a miserable lump, clutching my hand in between seizures while I let him watch more DVDs than he usually sees in a month. Towards the very end of the day he perked up just a little bit, so I'm hoping that maybe the worst is over and his fever will break during the night. Today was so utterly miserable for him, and he hasn't had a day this bad in a long, long time. The last thing he needs is a repeat of today. In fact, I would be perfectly happy if we never had a repeat of today. Another day like this one, and I may accidentally find out what a chocolate overdose looks like. That is, if I can find any in the house that I didn't eat today. I've gotten spoiled by Connor having so many good days, and I'd forgotten just how nerve-wracking and exhausting this kind of thing is.
I'm so glad this day is over.
3 days ago